Vaccine Informed Consent

Kuo never gave me these:
http://www.immunize.org/catg.d/p2027.pdf

Although mandated by federal law, a majority of doctors don’t bother to give patients any of these Vaccine Information Sheets before administering a vaccine. I was never given these for any of the seven vaccines that Kuo’s office gave to me. As a matter of fact, I wasn’t even aware that these existed and that it was a law that patients be provided with this until 4 years after the vaccines were given.

I urge everyone who was given a vaccine, and NOT given the corresponding vaccine information sheet to file a complaint with the state medical board.

Sorry, we comprompomised your health info. My bad.

So for the last two weeks I’ve been fighting with the admins at 2 different doctor’s offices to get copies of my medical records there. It’s tedious – the system is designed to frustrate the average patient: “you have to fax in a request.” I point out that the only places that still use fax machines are doctors offices. “Why can’t I email you the request?” I ask. “Because that’s not secure – we wouldn’t be able to make sure the information stays private.” And on and on the game goes.

Today I get a letter in the mail from the neurology department at UCSF. It seems that someone lost a thumb drive with my personal medical information on it. Curious, since when I last saw them – almost a year ago, I was informed that the test results were negative and that there was nothing wrong with me. What is someone doing with my health info almost a year later when there was nothing wrong with me?

So tell me – why is it OK for medical offices to put patients health info on thumb drives to be lost, but it’s NOT ok for me to request for my medical records via an email?

Trust

In July of 2007, I was diagnosed. A letter from the blood bank told me I needed to see my doctor right away. Panicked and scared, I did what I was told.

Tommy Kuo had been my primary care doctor for at least a decade.  I saw him infrequently, as I had always been fairly healthy, other than the occasional sinus infection.  I had always known Kuo to be chatty and personable, at times telling me about other patients, sometimes he seemed to relish telling the stories of extreme outcomes.
My husband was also a patient of his, as well as my children when they became adults.

I trusted him.

Kuo referred me to a gastroenterologist, and said I needed to get vaccinated for Hepatitis A and Hepatitis B. “If you get either of these when you have Hep C, you’re toast,” he told me.
And so I did.
To me, vaccines were something that always worked and would keep me from getting sick.

How very wrong I was.

In August 2007, I had my first dose of Hepatitis A and Hepatitis B vaccines.

Since my health insurance plan was an HMO plan, Kuo was the gatekeeper of my health. He dictated which doctors I could see and when. The GI that he referred me to took weeks to get an appointment. I suspected that HMO patients had the lowest priority when it came to appointments.

I finally saw the GI, and had liver tests done and started on a treatment for Hep C.

In September 2007, I had my second dose of Hepatitis B Vaccine.
The treatment for Hep C wasn’t easy, and ultimately failed. Towards the end of the treatment (week 12), I went to see Kuo. I was in pain, numb and tingly and cold. He ordered a battery of tests, all of which were negative.
The pain continued.
In February 2008, I returned to Kuo’s office for my third dose of Hepatitis B vaccine and second dose of Hepatitis A vaccine.

I was supposed to start feeling better at this point, since I had stopped interferon treatments six weeks earlier.  Instead, I was feeling worse.

Autoimmune Syndrome Induced by Adjuvants

http://www.the-rheumatologist.org/details/article/1081203/ASIA_A_New_Way_to_Put_the_Puzzle_Together.html

Very interesting – some doctor has actually put a name to it. ASIA syndrome or Schoenfeld syndrome. Someone gets a bunch of vaccines in a short period of time, throw in some other aspect that fans the flames (interferon?) And the patient starts complaining about all sorts of vague symptoms, but not immediately after the vax. It eventually evolves into an autoimmune disorder. Sound familiar?